The Patient Advisory Board (PAB) is comprised of six members, including patient representatives, patient engagement experts, and ethicists. The PAB is commited to deliver a patient-centric approach ensuring that patients are represented from the beginning of the therapy development. The patients are actively involved in discussions throughout the project and assist in shaping iPSpine programs, services and initiatives designed to improve research (dissemination) within and outwith of the iPSpine project. This includes help defining patient needs, communicating about the iPSpine project to patient communities, and translating scientific findings to the public.
Koert Hommel has a background in travel industry and international cooperation. He worked at JoHo’s marketing department and coordinated several youth talent development programs, together with the Dutch Ministry of Foreign Affairs. Currently Koert is unemployed due to chronic lower back issues. He has been experiencing lower back pain since he was a student at BUAS University, back in 1995. Between 2012 and 2018 he had several hernia and spinal fusion surgeries (L4/L5 and L5/S1). Koert is a huge fan of Bruce Springsteen and he likes to make music himself with his two bands. Besides that, he shares chronic pain stories on his own blogsite Erzitmuziekinmijnleven.org.
Why Koert joined iPSpine:
“Dealing with chronic pain is a lot about reinventing yourself. Breaking old habits and finding new meaning in life. As a world citizen I am always interested in international projects. Within the iPSpine project my back pain issues and international perspective come together. I will do my utmost to share my patient views with iPSpine research staff and project members”.
Over the last five years, Nikola Skoro has been developing pharma projects in the human and veterinary branches. Nikola joined iPSpine to assist facilitation and building up of the iPSpine veterinary network.
Nikola also suffers from chronic lower back pain and would like to help make a difference for patients.
Liisa Jutila has worked at the field of logistics from truck driver to transport manager and a teacher. She got slipped sick -98, same year as graduated from Plymouth University as a MSc in international logistic. Her plan was continue studies, but leg neuropathic pain and low back pain changed plan and 2005, instead having PhD she had to retire.
After some years of pain she find Finnish pain association (Suomen Kipu ry) and 2005 she became a president of the Finnish pain association. With her own experience she knew how important awareness and information is not just for the patient but also to their family and friends. She was one of the founders of Pain Alliance Europe, starting as a board member and later becoming vice president.
Within the iPSpine Patient Advisory Board Liisa is involved as a Patient Representative.
Why Liisa joined iPSpine:
“To be part of interesting project and giving patient perspective from national and European level.”
Lars Assen is a PhD Candidate in the field of Bio-ethics on the topic of Responsibilization of Stem Cell Researchers. He has a background in Technical Medicine, Philosophy of technology and Ethics. He has two year of experience as lecturer at a University of Applied Sciences. Within the iPSpine Patient Advisory Board Lars is involved as an Ethics expert.
Why Lars joined iPSpine:
“To help stem cell researchers in conducting more ethical research by including and combining the perspectives of researchers, regulators and patients on stem cell research.”
Carina Pittens, Athena Institute is an Assistant Professor Patient Involvement at the VU University. She has a background in biomedical sciences, and science and health communication. She has particular expertise in the methodology to involve patients meaningful in health research, policy and care practice. Within the iPSpine Patient Advisory Board she is involved as a patient involvement expert.
Why Carina joined iPSpine:
“To contribute to more meaningful patient involvement in (fundamental) research.”
Leonie Chaudron works in the IT industry as a Product Lead with a focus on data and digitization. During her time in University she was diagnosed with Ankylosing spondylitis. For the past 4 years she has also been a member of the Patient Advisory Board of ReumaNederland.
Why Leonie joined iPSpine:
“This project could potentially have a big impact on people with lower back pains and I want to help make the project and its results easily accessible and understandable for the people who could benefit from it.”
Olav Veldhuizen is head of the Project Management department at Catalyze. He holds an MA in Cultural Management from Northumbria University, UK. Mr Veldhuizen has more than 14 years’ experience in the management of large, international collaborative biomedical research projects, working closely with universities, large pharma and SMEs. He also has extensive experience in stakeholder engagement and dissemination activities, in particular working with patients and patient organisations as well as regulatory authorities such as the European Medicines Agency. In addition to Project Management he has had leading roles in dissemination work packages for several European projects. This has included initiating, organizing and running workshops to bring together stakeholders and multidisciplinary partners facilitating collaboration and dissemination.
Why Olav joined iPSpine:
“To support the dissemination and communication work package for this project.”
Jessie Rietdijk is a junior project manager at Catalyze. She holds a masters degree in Management, Policy Analysis and Entrepreneurship in Health and Life sciences from the Vrije Universiteit. In previous roles, she has gained experience in the ways of working in large public-private partnerships and the ways Dutch grants are issued.
Why Jessie joined iPSpine:
“To assist in dissemination and communication efforts for this interesting and very relevant project.”